Grammy-winning singer Celine Dion has opened up about her battle with stiff person syndrome and how music has helped her through physical therapy. In an interview with Vogue France, Dion discussed her diagnosis and her ongoing hope for a cure while learning to live with the condition.
Dion undergoes physical and vocal therapy five days a week and credits her family, children, and fans for motivating her to seek treatment. Her upcoming documentary, “I Am: Celine Dion,” will shine a light on her journey with stiff person syndrome and her determination to continue performing.
Stiff person syndrome is a rare neurological disorder that causes muscle stiffness, spasms, and rigidity, primarily in the back and legs. Dion’s late husband, René Angélil, who played a significant role in her career and personal life, met her when she was just 12 years old.
Reflecting on her childhood and career, Dion describes performing as her “school” and expresses no regrets about missing out on a “normal” childhood. Despite her health challenges, Dion remains passionate and committed to her art, as demonstrated by her appearance at the 2024 Grammys and her determination to return to the stage.
The upcoming documentary promises to offer viewers an intimate look into Dion’s life and her battle with stiff person syndrome. It will showcase both her private struggles and triumphs, inspiring those facing rare diseases to overcome challenges and pursue their dreams with determination and support. Dion’s story serves as a beacon of hope for many, highlighting the power of resilience and perseverance in the face of adversity.
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